I haven’t written about Ada for some time now. Towards the end of last year, I read a book called The 36hr Day, about dementia and it changed everything; how I view her, how I talked to her, how I listen and respond.
I no longer fear her. I now understand that when your brain is clogged with plaque, you often feel scared and confused and frustrated as all hell. And when you’re trying to express or rationalise that, it can come out all wrong.
When she yells “You are the devil! This is mine! I hate everything! I have nothing!” I hold her, and I say “I know. I understand. I know you don’t feel like you used to.” Or her favourite; “I know you don’t belong here.” And she’s often so grateful that someone ‘gets her’, instead of arguing, that she gets teary and hugs me.
This morning I went in and lay with Ada. (I do this when I want a sleep in, and her nurse is up). She turned to me and said “I can’t learn anything new.” It was a moment of clarity, like when someone from a foreign country says “I don’t speak English well,” but they say it in perfect English, which makes you momentarily doubt what they’re saying.

Love this Blog Ally K!
ReplyDeleteAK,
ReplyDeleteThis is just so beautiful...
You're just so beautiful...
T-Bird.
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Wow. Dementia always terrified me. I've seen family members sink into it, and all I want to do is run away, it's so heart-breaking, gut-wrenching. Because I feel like there's nothing I can ever do to help. Thanks for posting this. It really moved me.
ReplyDeleteThanks ladies! Way too kind. And Promethean Heat - to be honest, all I want is to run away too. I can hardly wait to get out the door whenever I am there. And to be completely honest, the less time I spend with her, the better I am at dealing with her when I do see her. Sad, but true.
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